Expressing support for the designation of April 5, 2026, as "Barth Syndrome Awareness Day".
Sponsor

Full profile: /officials/T000469
Source: Congress.gov · FEC
Cosponsors (11)
Members who have signed on to support this bill since introduction. Source: Congress.gov.
- Doris O. Matsui (D-CA-7)Original· 2026-02-11
- George Latimer (D-NY-16)Original· 2026-02-11
- Gus M. Bilirakis (R-FL-12)Original· 2026-02-11
- Jake Auchincloss (D-MA-4)Original· 2026-02-11
- Joe Wilson (R-SC-2)Original· 2026-02-11
- Lori Trahan (D-MA-3)Original· 2026-02-11
- Morgan McGarvey (D-KY-3)Original· 2026-02-11
- Ralph Norman (R-SC-5)Original· 2026-02-11
- Sharice Davids (D-KS-3)Original· 2026-02-11
- Sheri Biggs (R-SC-3)Original· 2026-02-11
- Valerie P. Foushee (D-NC-4)· 2026-03-19
Latest Action
The most recent step in the bill's legislative path. Committee Activity below shows referrals and reports; the full action-by-action history including floor proceedings lives at Congress.gov →
Plain-English Summary
This resolution would officially recognize April 5, 2026, as a national day to raise awareness about Barth syndrome, a rare genetic disorder that primarily affects males and can cause heart problems, muscle weakness, and immune system issues. The designation aims to increase public understanding of the condition and support for patients and families dealing with this disease. This is a symbolic measure with no direct regulatory or funding impact.
AI-assisted summary generated from the official bill metadata (title, subjects, actions) sourced from Congress.gov. Cached and reviewed. Always verify against the official text linked below.
Subjects
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