Expressing support for the recognition of October 5th as "National Peroxisomal Disorder Awareness Day".

[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[H. Res. 1613 Introduced in House (IH)]

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119th CONGRESS
  2d Session
H. RES. 1613

  Expressing support for the recognition of October 5th as ``National 
                 Peroxisomal Disorder Awareness Day''.

_______________________________________________________________________

                    IN THE HOUSE OF REPRESENTATIVES

                            October 5, 2026

Mrs. Kim submitted the following resolution; which was referred to the 
                    Committee on Energy and Commerce

_______________________________________________________________________

                               RESOLUTION

 
  Expressing support for the recognition of October 5th as ``National 
                 Peroxisomal Disorder Awareness Day''.

Whereas National Peroxisomal Disorder Awareness Day will help to foster 
        understanding of the impact that peroxisomal disorders, including 
        peroxisome biogenesis disorder-Zellweger spectrum disorder and the 
        related single enzyme deficiencies, like D-bifunctional protein 
        deficiency, have on patients and their families;
Whereas peroxisomal disorders are progressive genetic disorders that affect 
        peroxisome function and can impact multiple organ systems, often 
        resulting in neurological, liver, kidney, vision, hearing, 
        gastrointestinal, endocrine, and other serious health complications;
Whereas there are very few treatments and still no cure for peroxisomal 
        disorders;
Whereas all patients with peroxisomal disorders suffer from a variety of health 
        issues, causing a strain on resources and on the delivery of healthcare 
        in the United States;
Whereas peroxisomal disorders can have a devastating impact on the health and 
        finances of people of all ages, and equally affect people of all races, 
        genders, nationalities, geographic locations, and income levels;
Whereas peroxisomal disorders instill in patients and their caregivers a fear of 
        an unknown future with a life-threatening genetic disease and 
        apprehension over possible discrimination, including the risk of losing 
        their health and life insurance, their jobs, and their chances for 
        promotion;
Whereas countless friends, loved ones, spouses, and caregivers of patients with 
        peroxisomal disorders must shoulder, the physical, emotional, and 
        financial burdens;
Whereas people who have chronic, life-threatening diseases like peroxisomal 
        disorders and their caregivers have a predisposition to depression 
        because of their anxiety over pain, suffering, and premature death; and
Whereas spreading awareness on October 5th is crucial to reducing barriers to 
        health care access, including complicated and burdensome systems, 
        limited supply of health care providers with an understanding of 
        peroxisomal disorders, an arduous process for diagnosis, and limited 
        resources to invest in new therapies and treatments: Now, therefore, be 
        it
    Resolved, That the House of Representatives--
            (1) expresses support for the recognition of ``National 
        Peroxisomal Disorder Awareness Day''; and
            (2) expresses concern for the severe strain on American 
        families impacted by peroxisome disorders.
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