Govwatch

[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[H. Res. 1631 Introduced in House (IH)]

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119th CONGRESS
  2d Session
H. RES. 1631

Expressing support for the designation of the third week of October as 
              ``National Hunter Syndrome Awareness Week''.

_______________________________________________________________________

                    IN THE HOUSE OF REPRESENTATIVES

                            October 19, 2026

Mrs. Foushee submitted the following resolution; which was referred to 
                  the Committee on Energy and Commerce

_______________________________________________________________________

                               RESOLUTION

 
Expressing support for the designation of the third week of October as 
              ``National Hunter Syndrome Awareness Week''.

Whereas Hunter syndrome, also known as Mucopolysaccharidosis Type II (MPS II), 
        is a rare genetic disorder affecting approximately 1 in 100,000 to 
        170,000 live male births worldwide;
Whereas Hunter syndrome is caused by a deficiency of the enzyme iduronate-2-
        sulfatase, resulting in the harmful accumulation of complex sugars in 
        the body's cells and leading to progressive damage to organs and 
        systems, including the brain;
Whereas symptoms often appear in early childhood and may include developmental 
        delays, physical impairments, and a significantly shortened lifespan;
Whereas early diagnosis and intervention are critical to improving quality of 
        life and outcomes for individuals affected by Hunter syndrome;
Whereas increased public and medical awareness can lead to earlier diagnoses, 
        better treatment options, and expanded research efforts toward potential 
        therapies and a cure; and
Whereas families affected by Hunter syndrome face extraordinary emotional, 
        financial, and medical challenges, and deserve greater support, 
        understanding, and advocacy: Now, therefore, be it
    Resolved, That the House of Representatives--
            (1) supports the designation of ``National Hunter Syndrome 
        Awareness Week'';
            (2) encourages Federal agencies, research institutions, and 
        advocacy organizations to expand efforts in education, 
        research, and the development of treatments for Hunter 
        syndrome; and
            (3) urges continued congressional support for funding rare 
        disease research and initiatives that directly benefit 
        individuals and families in the Hunter syndrome community.
                                 <all>
Expressing support for the designation of the third week of October as "National Hunter Syndrome Awareness Week".

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