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© 2026 Govwatch

HRES1060Referred to Committee

Expressing support for the designation of April 5, 2026, as "Barth Syndrome Awareness Day".

Share:
Introduced
In Committee
3
Passed One Chamber
4
Passed Both
5
Signed into Law
119th
Congress
2026-02-11
Introduced
11
Cosponsors
HRES
ⓘ
Type

Sponsor

Paul Tonko
Paul Tonko
Democrat · NY · Representative
Votes with party: 98.9% (544 recorded votes)

Full profile: /officials/T000469

Source: Congress.gov · FEC

Cosponsors (11)

Members who have signed on to support this bill since introduction. Source: Congress.gov.

  • Doris O. Matsui (D-CA-7)Original· 2026-02-11
  • George Latimer (D-NY-16)Original· 2026-02-11
  • Gus M. Bilirakis (R-FL-12)Original· 2026-02-11
  • Jake Auchincloss (D-MA-4)Original· 2026-02-11
  • Joe Wilson (R-SC-2)Original· 2026-02-11
  • Lori Trahan (D-MA-3)Original· 2026-02-11
  • Morgan McGarvey (D-KY-3)Original· 2026-02-11
  • Ralph Norman (R-SC-5)Original· 2026-02-11
  • Sharice Davids (D-KS-3)Original· 2026-02-11
  • Sheri Biggs (R-SC-3)Original· 2026-02-11
  • Valerie P. Foushee (D-NC-4)· 2026-03-19

Latest Action

The most recent step in the bill's legislative path. Committee Activity below shows referrals and reports; the full action-by-action history including floor proceedings lives at Congress.gov →

Referred to the House Committee on Energy and Commerce.

2026-02-11

Source: Congress.gov

Plain-English Summary

This resolution would officially recognize April 5, 2026, as a national day to raise awareness about Barth syndrome, a rare genetic disorder that primarily affects males and can cause heart problems, muscle weakness, and immune system issues. The designation aims to increase public understanding of the condition and support for patients and families dealing with this disease. This is a symbolic measure with no direct regulatory or funding impact.

AI-assisted summary generated from the official bill metadata (title, subjects, actions) sourced from Congress.gov. Cached and reviewed. Always verify against the official text linked below.

Subjects

Health
Full bill text is not yet cached locally.
Open text viewRead on Congress.gov

Related legislation

Bills by the same sponsor or covering overlapping subjects.

  • HR8209To amend the Public Health Service Act to reauthorize the school-based health centers grant program.
    Reported by Committee · 2026-05-21
  • HRES1290Recognizing the significant and often overlooked behavioral health needs experienced by individuals and families affected by rare diseases, and for other purposes.
    Referred to Committee · 2026-05-14
  • HR8241Power for the People Act of 2026
    Referred to Committee · 2026-04-09
  • HR1355Weatherization Enhancement and Readiness Act of 2025
    Referred to Committee · 2026-02-04