HR9169Referred to Committee

PKD Cures Act

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Introduced
In Committee
3
Passed One Chamber
4
Passed Both
5
Signed into Law
119th
Congress
2026-06-04
Introduced
7
Cosponsors
HR
ⓘ
Type

Sponsor

Debbie Wasserman Schultz
Debbie Wasserman Schultz
Democrat · FL · Representative
Votes with party: 97.1% (595 recorded votes)

Full profile: /officials/W000797

Source: Congress.gov · FEC

Cosponsors (7)

Members who have signed on to support this bill since introduction. Source: Congress.gov.

Latest Action

The most recent step in the bill's legislative path. Committee Activity below shows referrals and reports; the full action-by-action history including floor proceedings lives at Congress.gov →

Referred to the House Committee on Energy and Commerce.

2026-06-04

Source: Congress.gov

Committee Activity

Currently in

Plain-English Summary

The federal government would increase funding and support for research into polycystic kidney disease, a genetic disorder that causes cysts to form in the kidneys and can lead to kidney failure. This would help scientists better understand the disease, develop new treatments, and improve outcomes for the roughly 600,000 Americans living with this condition. The funding would support both basic research and clinical studies aimed at finding better ways to slow or stop the disease's progression.

AI-assisted summary generated from the official bill metadata (title, subjects, actions) sourced from Congress.gov. Cached and reviewed. Always verify against the official text linked below.

Subjects

Health

Full Bill Text

Verbatim text published on Congress.gov via GovInfo. Use Cmd+F / Ctrl+F to search within this excerpt.

119 HR 9169 IH: PKD Cures Act U.S. House of Representatives 2026-06-04 text/xml EN Pursuant to Title 17 Section 105 of the United States Code, this file is not subject to copyright protection and is in the public domain. I119th CONGRESS2d SessionH. R. 9169IN THE HOUSE OF REPRESENTATIVESJune 4, 2026Ms. Wasserman Schultz (for herself, Mrs. Miller of West Virginia, Mr. Cleaver, and Mr. Bacon) introduced the following bill; which was referred to the Committee on Energy and CommerceA BILLTo support polycystic kidney disease research, and for other purposes.1.Short titleThis Act may be cited as the PKD Cures Act.2.FindingsCongress finds the following:(1)Polycystic kidney disease (in this section referred to as PKD) is one of the most common life-threatening genetic diseases, affecting approximately 500,000 Americans and millions worldwide.(2)PKD leads to end-stage renal disease, or kidney failure, in the majority of affected individuals, necessitating dialysis and transplantation.(3)More than 5 percent of patients enrolled in the Medicare End-Stage Renal Disease program have kidney failure caused by cystic kidney disease, primarily PKD.(4)End-stage renal disease and kidney failure attributable to cystic kidney diseases, like PKD, cost Medicare an estimated $3,000,000,000 annually.3.Expansion of NIH research on polycystic kidney diseaseSubpart 3 of part C of title IV of the Public Health Service Act (42 U.S.C. 285c et seq.) is amended by adding at the end the following:434B.Expansion of NIH research on polycystic kidney disease(a)Research focusThe Director of the Institute shall expand and intensify research activities regarding polycystic kidney disease (in this section referred to as PKD), including—(1)basic research to understand the genetic and molecular mechanisms of PKD;(2)translational research to identify biomarkers and potential therapeutic targets; and(3)clinical research to evaluate the safety and efficacy of new and existing treatments.(b)CollaborationIn implementing the requirements of subsection (a), the Director of the Institute shall—(1)collaborate with other Federal agencies, academic institutions, and private sector stakeholders to accelerate the development of treatments and cures; and(2)support training programs to cultivate a workforce of researchers and clinicians specializing in PKD.(c)PriorityIn implementing the requirements of subsection (a), the Director of the Institute shall prioritize research proposals that demonstrate a clear potential to advance understanding and treatment of PKD.434C.Development of comprehensive PKD roadmap(a)In generalThe Director of NIH shall establish a working group to develop a comprehensive roadmap for polycystic kidney disease (in this section referred to as PKD) research and innovation.(b)MembershipThe Director of NIH shall appoint the members of the working group, who shall be—(1)experts in nephrology, human genetics, or molecular and cellular biology with expertise in the mechanistic pathways of PKD;(2)representatives of PKD patient advocacy organizations; or(3)such other stakeholders as the Director determines appropriate.(c)ResponsibilitiesIn developing the comprehensive roadmap referred to in subsection (a), the working group shall—(1)identify research gaps and priorities;(2)recommend strategies to enhance collaboration between the public and private sectors;(3)propose timelines and benchmarks for achieving key milestones in PKD innovation; and(4)develop a plan for integrating new technologies, such as artificial intelligence and precision medicine, into PKD research and care.(d)ReportNot later than 24 months after the date of enactment of this section, the working group shall submit to Congress a report detailing the findings and recommendations of the working group, including the comprehensive roadmap referred to in subsection (a)..
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